Navigating the Journey: When an Adult Receives a New Autism Diagnosis

Words by Maggie Downs

 

Along with increased awareness of autism spectrum disorder (ASD), the number of adults receiving a diagnosis has been growing. Stories like the one recently shared by actress Tallulah Willis — who said her own diagnosis as an adult was lifechanging — spotlight the fact that people of all ages can be diagnosed with autism, not just children.

 

This can mark the beginning of a journey toward self-understanding, acceptance, and empowerment. However, this diagnosis comes with its own set of challenges and adjustments, according to DAP Health Chair of Psychiatry Dr. Sean Barlow, who practices out of Centro Medico Cathedral City.

 

 

Relief and Validation

First and foremost, the diagnosis itself can be a mixture of relief and validation. Many adults who receive an autism diagnosis have spent years, even decades, grappling with feelings of being different or struggling to fit in without understanding why. Then comes the diagnosis, the result of an assessment by a doctor or an evaluation by a mental health professional.

 

“If the person made it to adulthood without a diagnosis, they probably have a milder form of ASD,” says Barlow. “So, the challenges might be that you’ve been keeping yourself isolated, and you might have trouble connecting with other people. Even though you can take care of yourself, you have trouble with interpersonal interactions. And maybe you’ve been feeling awkward for years.”

 

In such cases, the diagnosis can provide clarity, and explain the unique way the person perceives the world. It validates their experiences and feelings, offering a sense of relief that they are not alone.

 

 

A Journey of Self-Discovery

Also following a diagnosis, individuals often embark on a journey of self-discovery. They may seek out information about autism, trying to understand how it manifests in their lives specifically. This exploration can involve reflecting on past experiences through a new lens, recognizing patterns of behavior or sensory sensitivities that were previously misunderstood.

 

One crucial step is to seek support and resources, such as the assistance of a psychiatrist like Barlow, connecting with autism support groups, seeking out counseling tailored to autistic individuals, or finding online communities where they can share experiences and advice.

 

“That’s also what’s happening with social media,” says Barlow. “You have people with level-one spectrum disorder who were never diagnosed, but now they see other people like them. There’s a representation of autism that never existed before.”

 

 

Reevaluating Identity and Self-Image

For many adults newly diagnosed with autism, there is also a process of reevaluating their identity and self-image. Acceptance of their autistic identity often involves embracing their strengths and challenges alike, recognizing that autism is an integral part of who they are.

 

Practical considerations also come into play. Depending on the severity of their symptoms and the impact on their daily functioning, individuals may explore accommodations at work or in educational settings. They may also seek out strategies to navigate sensory sensitivities, social interactions, and other challenges associated with autism.

 

By finding support and resources, individuals can navigate this journey with optimism, forging a path that honors their authentic selves. While it may come with its share of challenges, it also opens up opportunities for growth, connection, and “a deeper appreciation of one’s unique neurodiversity,” says Barlow.

 

To be evaluated for autism, please contact your primary care physician — at DAP Health or elsewhere — who can refer you to a behavioral health specialist.